We ate dinner in the dark

 

This is why my blog posts are a month apart. I start typing and the heathens annihilate a cake.

Living with Waylon lately, well it's kind of been like living with a nuclear bomb.

I haven't figured out if it's the change of weather, getting back into routine after Christmas break, or if he's just trying to send us to the nut house, but it's getting old.

His sensory system has been just totally off kilter lately. You know, we all have sensory issues here or there, like I click pens incessantly. I bet you have a favorite kind of socks, and maybe you hate the noise of fingernails on a chalkboard, or the texture of marshmallows (that one's for you, Jennifer).
But Waylon's sensory system, well it's just all jacked up.

Someone told me once that everyone has a magical red solo cup that is filled to the brim with our sensory system. When we take in a new sight, smell, sound, taste, or touch, it drops into our cup, maintaining a perfect balance at the rim, and we continue on in an ignorant sensory bliss.

My Autistic Kid Will Lick Your
Honor Student. It's true.

But for Waylon, somedays his cup is only half full, and he spends his day searching for anything that will give him sensory input... Hitting (touch), licking (taste), screaming (sound), he's trying to fill up his cup.



Other days, his cup is overflowing, and he can't get rid of the overload of senses coming in. So he spends his day with his ears plugged and eyes closed, usually in our laundry room, changing clothes repeatedly, looking for the shirt that feels just right.


The mall is sensory overload at it's finest, and of course the day we celebrated Waylon's birthday he was in sensory overload to the hilt. I used to be the nervous nilly, germophobic new mom. Now, if Waylon is happy plugging his ears on the floor at the mall, so am I.

Other times, his sensory processing difficulties are really scary. He didn't notice when he touched a scalding hot fish fryer a couple summers ago (hence the scar on his right arm) and his tooth abscessed before we realized he had a cavity last fall. Coupled with the fact that he can't talk, I'm always paranoid that the kid is really hurt and just doesn't know it, or doesn't know how to tell us.

So if living with Waylon is like living with a nuclear bomb, dinner time is usually comparable to Hiroshima. Shrill screams, chairs flying through the air, children running for their lives (okay maybe I'm being dramatic).
Waylon's teacher told us that his behavior has improved since they changed the lighting in the classroom. So last night we ate dinner in the dark. It didn't really work. It was like Hiroshima at night time.
But it was about as romantic as it gets around here. I guess I'll take it.

Oh wait, I take that back. Speaking of romantic, Travis and I spent date night this month (our 7th wedding anniversary) at a couple wineries, a bed and breakfast, and we stumbled (quite literally) into an awesome underground bar. Take that, silly studies.
I just love that guy.





 

 

 

 

Birthday Hostility

December 27, 2006. Six years ago today, what I knew about autism could fit in a tea cup. It started with an A and ended in -utism. Wait... Did I even know how to spell it? Not sure.
Today, what I know about autism could fill a million tea cups. You should see the library of books I've read, and counted the hours I've spent searching the Internet for answers.
But what I know about Waylon? Next to nil.
Today, December 27, 2012, my boy turns six. And I want to scream at the blanks in the baby book that glare at me each time I get the courage to open it. 'My favorite color' or 'My first friend.'
Who is this kid who lives in my house? Where is he at? If he woke up one morning without this invisible cloak of autism, would he say, "Mom, not oatmeal again! You know I hate oatmeal!"?
I want to ask him who he wants on his birthday cake. I want to know if he likes grape or strawberry jelly. Recess or lunch. Chicken nuggets or a hamburger.

I wish instead of delivering a placenta minutes after Waylon, I would have delivered an instruction booklet. I think it would have said things like,
"Don't let Waylon eat anything red before you go out in public."
Or "Don't leave the toilet paper on the roll so he can spin it all out."
Or "Don't punch the lady who says, 'And how old are you, little man? Did you tell Santa what you want for Christmas?'"
Have you heard him squealing for the last hour, lady? He can't talk.
She just doesn't understand.
Or maybe it would say, "Start a blog so you can vent all your frustrations instead of taking them out on Waylon.
He just doesn't understand."

So here's the thing. I'm really not a negative person. I think my glass is generally half-full, but sometimes just barely. And unfortunately, Waylon's birthday is usually one of those days. Another year has gone by, the clock is ticking. I want to meet my son someday. And I want you to, too. He is a really cool person, I just know it.

Floor puzzle heaven. Proof that you don't have to be able to talk for Santa to know all your wishes.

This is a bunch of crap.

At this current moment in time, all I hope for Waylon is that he is able to have his own home someday, so I can go to his house, drop my pants, and lay a pile of crap on his carpet.

That is all I needed to say right now, thanks for letting me vent.
I need to go find the Lysol.

the naive one

Once upon a time, there was a couple with an amazingly cute, charming, well-behaved three-year-old, and a growing, losing-the-baby-look, busy, giggling one-year-old, and they said "Parenting is easy. Let's have another!"
And God smiled.
So they were blessed with the naive one.

The naive one does not know what autism is. She has a brother who is sometimes annoying, but she loves him so much. She gets in his face. She drags him around. She is bossy, and rude, and gives sloppy kisses. He is crazy and wild and splashes water in her face. She steals his cars, just to hear him scream. He screams, she stomps her feet, and they have an argument... without words.

And so he grows up in a neurotypical sandwich, worth more than all the therapy in the world.

The naive one has far passed him developmentally, but she doesn't know it yet. She think she's his mother, but then again, she thinks she is all of ours' mother. She has high expectations for him. He is her big brother, after all.

So yesterday, the naive one yells "I love you Mom!" twice. I say, "You just said that, silly girl." And she says, "I know, the second one was from Waylon. He's shy."

I've said it once, and I'll say it again. This is stuff you can't dream. And all year long, but especially this week, I am ever so grateful to the One who concocted this life of mine. God is so good.

Happy Thanksgiving to all of your families, from ours.

Among other things...Nutella is not to be eaten from the jar.

 

 

Shortly after the last post, which was a weekend of insomniac nutella fests and smashing light bulbs with mardi gras beads, I had the soul-cleansing pleasure of taking a mini roadtrip across southern Missouri on probably the most beautiful weekend of fall.

And it was just what the doctor ordered.

 

 

We took a wrong turn and wound up on a twisty, winding southern Missouri road with low water bridges and beautful views. I don't think it was a mistake. I definitely needed this refresher of God's wonders.

 

I think Waylon did too.

 

We turned a sharp curve and found this cute little nook in the middle of nowhere. Just cute as all get out, it was screaming at me to pull over and come in for a peek. But alas, I saw the invisible sign on the door that said, "No kids with autism allowed." So it will have to wait for a grown-ups only road trip someday.

 

 

A couple of weeks later, Travis and I were entranced by the words of a woman with autism who was unable to speak until she was four years old. Meeting Temple Grandin was amazing, and we came home with lots of new ideas to try, books to read, and most of all, hope.

PS- If you haven't seen the movie Temple Grandin, do it. Now.

 

 

Then it was Halloween, quite possibly Waylon's least favorite holiday. He hates costumes, only getting one piece out of a huge bowl of candy, and not getting to go in to explore every single house we stop at. Other than that, we had a great time.

 

And as always, Trav and I went on our monthly date. Because I don't care who you are, or if your kids are angels, you'll be a better parent if you find time in your busy schedule for yourself, and each other. Even if you watch one half of the worst NFL team in history sucking big monkey chunks, it's worth it.

 

 

 And among all these happenings this month, we're still working on understanding that although Nutella is delicious, it is not to be eaten straight from the jar. =(

Insomnia.

Waylon is a total insomniac.
It's nothing new, really- many studies have shown and many autism moms can attest to the magical hours between midnight and six A.M. when kids with autism are at their finest.

The real irony of it all is, at the end of the day, parents of kids with autism need sleep. Bad. And Waylon shows no mercy.

So, in the wee hours this morning when Waylon came running into our bedroom with Travis's most precious circa 1970's A-Team replica van that is cautiously hidden on the highest shelf of a rarely opened closet in the utility room.... I just smiled. Travis did not.

When we surveyed the damage in the kitchen, where Waylon annihilated half a jar of Nutella and a loaf of bread with a plastic fork... Travis just smiled. I did not.

It's these moments when I am so thankful to have such a great husband. We keep each other calm, we keep each other laughing, and we keep each other from duct taping him down at night.

If you're wondering where the "half a jar" of Nutella went- it went in his mouth, straight off the fork. Yeah, I think he's gonna need an extra dose of Melatonin tonight.

 

ohmygoodness

 



Look at this boy grow!

Remember last year's school pics?

I still don't think he's wearing any pants.

 

abso-stinking-lutely adorable