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Thursday, March 26, 2015

thankful

Rejoice always, pray without ceasing, in everything give thanks; for this is God's will for you in Christ Jesus. 
1 Thessalonians 5:16-18

But sometimes it's hard when my prayers are so heavy, Lord. How am I supposed to give thanks?

We pray for our friends down the road whose preschool grandsons shouldn't even know that there are such things as chemo and radiation
We pray for the high school football player from one county over, who's at St. Jude's right now, starting an aggressive cancer treatment plan.
And our hearts are heavy and our prayers are continuous for a local community, who held a prayer vigil last night for a toddler who never got to take her first steps.

I wish I didn't have to be, but today, Lord, I am thankful for autism.

Thursday, March 12, 2015

A Manly Katzer Haiku

Waylon's behavior improved enough last week that he was able to participate in his classroom activities a little more. I had forgotten how much I missed seeing his sweet handwriting come home in his backpack, during this time that he has been struggling to stay in his classroom, let alone complete school work.

I know I'm a bit behind, but I just had to share this gem that he brought home last week. To some this may just look like a handwriting worksheet, but to me it looks like he's written a manly haiku of sorts. 
I like to call it The Katzer Mantra.


I eat pizza.
I eat chips.
Katzer.


(Like Shakespeare or Bon Jovi, Waylon obviously feels that writing his first name is unnecessary.)

Thursday, March 5, 2015

My tank runneth over

I'll just say it: This has been, by far, the most difficult year of autism we've experienced thus far.

Major behavior changes have brought weekly team meetings, medication changes, new doctors, new therapists, and two exhausted parents.

Today, a need for some free wi-fi (and Rose Mary and Caden's begging) brought us to the library after school. Yes- Waylon's first trip to the library in years. 

I sat in the parking lot and gave everyone the shpeel: be quiet, behave, 2 books each, no arguing. Waylon and I strategically waited in the library's front hall, alone (except for the free wi-fi and the Walter family- neither of which pass any judgment) while the others checked out their books.

Momma Walter said "Wow! Waylon is doing so good!" and I was like
Holy Crap she's right!

We chatted for a bit with the Walter fam, we sat in the window seats and sang songs, we looked at the art, he licked the Beatrix Potter display.


It felt so... normal.
Just a mom and her freaking adorable kid chilling in the library.

A new BCBA (that's fancy for behavior therapist) came to the house last week. He said to pretend that Waylon has an "attention gauge" on his shirt... and when the gauge looks like it's about half-full we should go ahead and fill up his tank- by sitting down with him and giving his favorite deep hugs and singing his favorite songs, before the gauge becomes dangerously close to empty (meltdown time). Brilliant! Right?!

Well, I realized that these past few months have left my tank dangerously close to empty. The new behaviors have nearly zapped my strength and my sanity. I was so busy worrying about the kids, and making phone calls, and filling out paperwork, I didn't realize that my gauge was running low.
Today, Waylon filled up my tank.


Now my tank will start to empty again (actually I think I lost 1/4 of a tank between 4:00 and 5:00 tonight) and I will have to find ways to fill it back up.
And you know, here's the thing: although our date nights are very important, and our time at work being "normal people" is important, and being able to crush candy at 10pm in a silent house is important, that's actually not what fills up my tank. That's survival stuff. 

Love. That's what fills up my tank. Love.
Today, Waylon- my boy who can't talk, and can't hardly look at me, and mostly screams, showed me love.
My tank runneth over. 

Sunday, March 1, 2015

The day I took 5,429 selfies

Things that happened on Friday, February 27th, 2015 (a day for the record books).
1. I took a shower alone with no one else in my house, for 20 minutes (and *gasp* I shaved my legs).
2. IT WAS A GOOD HAIR DAY.
3. I put on eyeliner and mascara for the first time in YEARS. (I shuddered when I thought about all of the bacteria that has been living on the eyeliner pen that I dug out of the drawer... But I put it on anyways. No pink eye yet.)
4. As a direct result of 1,2, and 3- I took approximately 5,429 selfies.
5. Oh, and I also co-hosted a standup comedy benefit in front of over 300 people.
Friday, February 27th, 2015 was incredible. 
Inspirational. 
Therapeutic. 
I am so so proud of the 11 very brave parents of children with autism who took the stage to tell their stories. I think what the dashing young co-host with the incredibly good hair and clean shaven legs actually said was, "These parents are setting aside society's notion of 'having it all together', in order to give us a glimpse of the highs and the lows, and the frankly hilarious moments of their lives."
And that they did.
And while I am very proud that we raised $7000 for Camp Encourage, I am also overwhelmingly proud of the awareness and acceptance and laughter that we created for the autism community.

Friday, February 27th, 2015 was a day that I celebrated a very special boy, who has autism, and has stolen my heart-- and sanity.


Tuesday, February 24, 2015

come hell or high water

We've needed a date night lately like we've needed air and water. We've been putting it off way. too. long. Finally last week TK said, "We're going on a date Saturday night COME HELL OR HIGH WATER". So I said, "Yes, please".
And wouldn't you know it- as we were walking out the door Saturday, we noticed our laundry room had flooded and soaked the 7,249 loads of unfolded laundry within and the basement below. (HELL OR HIGH WATER)

So we sat in Texas Roadhouse and ate marginal steak and ordered extra hot rolls and honey butter and laughed {and cussed some} about the small flood in our home.

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Every other Wednesday night since November, I've been sneaking to KC to meet with 10 other autism parents and a few other super funny people to plan the 2015 Evening with the 'Rents (a fundraiser for Camp Encourage). We talk about the hilariously funny things our {adorable} kids with autism have done, the tears they have brought us, and the joy. And we laugh so. freaking. hard.
So while working to plan a comedy show with parents of children with autism, I realized something very important. And I want to share it with you, too.

These are trying times for many. The burdens are heavy. The struggle is real. 
But when crap is hitting the fan (sometimes figuratively, sometimes literally), if you can laugh with someone, you can get through it. Find the joy in everything. (It's there, trust me!)
Crap is so much easier to clean off the fan when you are laughing about it with someone.

If you are currently climbing uphill in your journey, you will get through these trying times, (COME HELL OR HIGH WATER). Trust me!

This Friday, February 27th, I am proud to be a co-host for the 2015 Evening with the 'Rents. Like last year's event, it promises to be a night of laughter and joy, and a celebration of those with autism that we know and love, who have stolen our hearts {and sanity}. Really- it's cheap therapy (and the only therapy program in the area with a full bar in the lobby).
Tickets are still available, and if it sells out you can bet that yours truly will be crapping herself (instead of cleaning up someone else's crap, for once).  Get your tickets here!


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Laughter and tears are both responses to frustration and exhaustion. I myself prefer to laugh, since there is less cleaning up to do afterward.
--Kurt Vonnegut
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I call BS on the "less cleaning up to do" part. 
    --Lindy Katzer
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Friday, January 16, 2015

And then it hit me

SO it all started when I swung into the gas station to fill up the guzzler that we are borrowing from my bro and sister-in-law (my poor sweet minivan is down in the tranny and my 28-year-old self is having minivan withdrawals- WHAT IS HAPPENING TO ME). So anywhoo, we're at the gas station, and Waylon hopped out of the vehicle. Oh snap.
There is this feeling that an autism mom has when your child makes a sudden movement in a parking lot, it's sort of like staring at a ticking bomb that has two fuses: I might be able to dismantle the autism bomb and safely contain him. Or he might detonate right here and now in this very parking lot.
Eeesh. So many behavioral strategies running through my head.
But I'm feeling confident today. I say and sign, "Help me, Waylon!" and he proves all of my fears wrong. He helps me unhook the nozzle and plug it in the car. He is thrilled to be allowed out in the daylight- flapping his arms and eeeeeeeing his approval. For just a second I think my chest puffed out and my head swelled and I thought, "Look at me, teaching my special needs kid all these life skills and stuff!" Too soon, Lindy, too soon.
Rose hops out then, too. She starts singing about pumping gas and other silly things. The grumps at the pump next to me were less than pleased about the chaos unfolding. So when I turn to give her the devil-mom stare and say GETINTHECARNOW through my gritted teeth (I mean she is singing and dancing in front of a ticking bomb, remember?), he darts. Of-freaking-course.
But you know my sleek autism mom skills (i.e. cat-like reflexes) nabbed his hood just a few feet from the vehicle. Good thing, right? Right. He was safe from traffic. It just also means that I was next to the bomb when it detonated.
The grumps at the other pumps are highly unappreciative of how impressive an autism bomb can be when it detonates.

And then it hit me (no pun intended).
She just wanted to sing.

There was a time when Rose did everything Waylon did. It was very difficult to teach the toddler Rose right from wrong, when she was copying every move of Waylon's- who was still not talking at all when his younger sister was telling stories. It was a stressful and emotional time, trying to potty train my toddler when my four year old was still wearing diapers.
Once, when I wrote about the naive one, I didn't realize how fleeting her naivety would be. She isn't naive anymore.
She knows.
She knows she has an exceptionally awesome brother.
She knows she has been blessed with a healthy body and healthy mind (and that not everyone is so fortunate), and I have no doubt she will use them to do wonderful things someday.
She knows firsthand what it means to give freely of yourself for someone who needs you. Impressive.
Perhaps most importantly, she knows she is special.

These things are true for Caden, too. He was and is Waylon's first friend, first mentor, and first therapist. And Lucy- I can already see her watching Waylon, and Waylon watching her, and I can't wait to watch their connection grow. (At the current moment it's kind of stuck at a "her slobbering on his puzzle pieces and him screaming at her" phase).

So tomorrow morning- I am squirrel hunting with Caden (gross). Tomorrow afternoon, lunch date with Rose. I need to remind them how awesome they are. As if they don't already know.
They totally are.

Friday, January 2, 2015

That's my boy


His eighth birthday has come and gone, and as usual, I find myself measuring him up against other kids his age.
Talking. Reading. Making friends. Playing sports.
Why is it that I always seem to measure Waylon by what he is not?
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Waylon is:
Happy. Loving. Non-judgmental. He holds my hand and gives me kisses and takes out my trash every day (even if it's empty). He does not bicker or argue. He is never rude. He loves his family more than anything in the world (except maybe Lightning McQueen). He did not ask Santa for a Kindle fire or an iPad or a Playstation. He only wants my love and Nacho Cheese Doritos.
.............................................
How does your eight year old measure up? 


That's my boy.